Mini update.

Hi all!

I decided to not do a FET cycle this month. The clinic told me to call when I’m ready, but they didn’t give me Letrozole. That is OK, I had a refill left and I used it. Not that I’m expecting to suddenly conceive on my own, but I don’t want to lose my regular cycles.

Hopefully I’ll be back around here soon.

Love,

Mrs. Hope.

Anxiety.

fertilityI haven’t updated this blog lately because I’m not sure what to say…We are currently on CD 10. I took Letrozole 5 mg from CD 3 to 7. I also started Gonal F 100 IU on CD 5.

We are doing mini-IVF (low medication cycle) because of my high risks of OHSS. My AHM levels are too high and I was afraid of doing a fully medicated cycle. I asked the doctor and he agreed with me. But now I’m wondering if I made the right decision.

So far I have four follicles, as expected. If I did the fully medicated cycle, it could have been uneventful, but if I got OHSS, I may have ended up with a high hospital bill that we can’t afford. I’ve read about other cases of women losing an ovary. I don’t know, the whole thing was too scary for me.

Now I’m just praying that everything goes well. The medicines and monitoring were so expensive. This is very stressing for me.

The non-supportive TTC community.

When we started this journey two years ago, there was a lot of things I didn’t know. Even today, I’m still learning new things every day.  It was thanks to an online forum that I discovered the 21-day progesterone test doesn’t need to be on day 21 specifically (it should be done 7-10 days after ovulation).

So, every time I read someone going through something that we already experienced, I try to give advice. Not because I know better, but because I would like to help others save time, money, energy, etc. I would love to have known from the beginning that I shouldn’t have taken Letrozole for more than 6 months without results. That my PCOS needed to be treated too.  That IVF wasn’t as impossible as I thought because CNY exists…

But to my surprise, people don’t like advise. People don’t take them well. People don’t want them. So, from now on, I’m not giving them anymore (on others’ posts). I will continue to write about our journey and experience. If someone really needs the help and the advice, I hope we can be of use.

Love,

Mrs. H.

I don’t like Metformin.

As prescribed by the doctor, I started Metformin two weeks ago. It was awful. I couldn’t stay on it. It made me dizzy the whole day and gave me a terrible fatigue. After talking to other ladies in an online forum, they made me realized that the Atlanta doctor had put me in a natural supplement that does pretty much the same. So after clearing it with the doctor, I’m back to Inositol.

I was also supposed to start a LDN, but I’m not doing it until my actual IVF cycle. Is anyone taking it? Do you have any experiences that can share with me? I’m not even sure why we are supposed to take it.

I’m really confused right now and I don’t know what I want to do moving forward. Last month everything was clear in my head, now it is not.

Guess who is NOT doing IVF next week?

As you may know, I was anxiously waiting to get my period (it came today), because this was going to be finally the cycle we were going to do IVF. We were going to Syracuse at the end of next week after triggering, and do the retrieval and transfer. Everything was planned (not plane tickets of course).

Two weeks ago I got very anxious about the possibility of Ovarian Hyperstimulation Syndrome. I requested a follow-up phone appointment for tomorrow. The idea was to discuss with a provider the possibility of doing Mini-IVF. I wanted to be completely sure before paying $3,850 for the Fertility Medicines.

My phone call was scheduled for 11:45 am. At 12:30 pm I called asking what happened. I was told the doctor was running a little bit behind, but he will call me later. At 2:30 pm I was told the doctor was in surgery and it wasn’t going to be able to call me that day. I explained that I needed to buy the medicines that day and to please find a different doctor to call me. At 3:45 pm I received the call that changed our plans.

Another doctor called me. He said right away: you can’t do IVF next week. I was caught by surprise, of course. He explained that after looking at my chart, he noticed that no one gave me Metformin. I told him my previous RE said I didn’t need it since my insulin levels are OK. He said that was a mistake, that without the Metformin we are not treating my PCOS and therefore, my eggs don’t have good quality. He said that is the reason why I haven’t been able to conceive. I agreed to do two months of Metformin and then proceed with the IVF.

When we hang up the phone I was so upset. I cried so much that day. I cried because I’ve been taking medicines for almost two years for nothing. I cried because I was very excited about next week. I cried because the Atlanta doctor could have said that a month ago. I cried because now we are back to zero.

But I’m also grateful. I’m grateful that my instincts told me to ask for a follow-up. I’m grateful that we didn’t pay all that money for anything. I’m grateful that we get to start again.

I didn’t tell you about the SHG.

As I mentioned before, we are moving forward to IVF in CNY Fertility. Since all my fertility tests were done in 2017, they required me to do them again. I explained that I wouldn’t be doing the HSG again because I’m allergic to Iodine. They said I could have an SHG and I agreed.

SHG: sonohysterogram, a saline infusion sonogram. It is supposed to be like a vaginal ultrasound, but they also insert a catheter with saline to look at the interior of your uterus. It is also the most uncomfortable thing I have experienced so far.

The hospital where I did it requires this appointment to be done over the phone. I called, scheduled it, asked my job for permission, and was told to be there on Monday, February 4th, at 1 pm. When I arrived at the clinic, they explained that the scheduling department booked me for the HSG, not the SHG and that I would have to reschedule. I refused, and since I hadn’t pee in over two hours, and they probably saw my frustrated/angry face, they told me they would do it.

The tech that did the vaginal ultrasound was the most impersonal healthcare provider I’ve seen. She even asked me to put the ultrasound machine myself. The doctor who came for the saline part was really nice, but the procedure was awful. It is way longer than the HSG and way more uncomfortable. I had cramps and pain the whole afternoon.

The only good thing about it the test was the results: uterus is good to go. Still retroverted, but healthy.